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The Late Onset Tay-Sachs Research and Education Foundation
was established in 2007 to educate and help people affected with this
debilitating disease that strikes older children, teens and adults alike.
We have gathered families, friends, doctors, medical researchers and
people afflicted with Late Onset Tay-Sachs (LOTS) to create an
important organization.
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The world needs to know that Tay-Sachs affects others bedsides infants
and very young children. In children Tay-Sachs generally leads to death
within five years. In adults, significant loss of mobility often confines
victims of the disease to wheelchairs. Many also suffer frequent hospitalizations, severe mood disturbances, depression, seizures and slurred speech,
coordination and balance problems, tremors and swallowing difficulties.
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Doctors and medical researchers increasingly believe that many people
with Late Onset Tay-Sachs are routinely misdiagnosed with Multiple
Sclerosis, Muscular Dystrophy and Lou Gehrig’s disease.
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Approximately 50-60% of all known cases of Tay-Sachs are people with
Jewish European descent. However, Tay-Sachs does not discriminate,
and males and females of virtually every ethnicity and race are affected.
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We hope to change the course of this disease through important medical
research. We need your financial contributions to make this hope a reality.
Please consider a generous donation, everyday more are turning to us for
help. The Late Onset Tay-Sachs Research and Education Foundation is exempt under
501 (c)(3) non-profit of the Internal Revenue Code. All contributions are tax deductible.
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KCBS News Healthwatch Report on Late Onset Tay-Sachs