Navigation
4924 Balboa Blvd., #354
Encino, CA 91316
phone: (818) 205-9644
fax:(818) 906-1914
Home
The Late Onset Tay-Sachs Research and Education Foundation was established in 2007 to educate and help people affected with this debilitating disease that strikes older children, teens and adults alike. We have gathered families, friends, doctors, medical researchers and people afflicted with Late Onset Tay-Sachs (LOTS) to create an important organization.
The world needs to know that Tay-Sachs affects others bedsides infants and very young children. In children Tay-Sachs generally leads to death within five years. In adults, significant loss of mobility often confines victims of the disease to wheelchairs. Many also suffer frequent hospitalizations, severe mood disturbances, depression, seizures and slurred speech, coordination and balance problems, tremors and swallowing difficulties.
Doctors and medical researchers increasingly believe that many people with Late Onset Tay-Sachs are routinely misdiagnosed with Multiple Sclerosis, Muscular Dystrophy and Lou Gehrig’s disease.
Approximately 50-60% of all known cases of Tay-Sachs are people with Jewish European descent. However, Tay-Sachs does not discriminate, and males and females of virtually every ethnicity and race are affected.
We hope to change the course of this disease through important medical research. We need your financial contributions to make this hope a reality. Please consider a generous donation, everyday more are turning to us for help. The Late Onset Tay-Sachs Research and Education Foundation is exempt under 501 (c)(3) non-profit of the Internal Revenue Code. All contributions are tax deductible.
 
LATEST NEWS
KCBS News Healthwatch Report on Late Onset Tay-Sachs KCBS News Healthwatch Report on Late Onset Tay-Sachs
3/30/2012
The Late Onset Tay-Sachs Research and Education Foundation.
10/20/2010
Educate and help people affected with this debilitating disease that strikes older children, teens and adults alike.
10/20/2010
The world needs to know that Tay-Sachs affects others bedsides infants and very young children.
10/20/2010
 
 
Carrier Statistics and Testing | State Proclamation | Personal stories | Charity Events and Fundraisers | Research Initiatives lateonsettay-sachsdisease � 2010 | Privacy Policy